Just in from visiting with the boys.
Allan was all dressed up in a fancy new vest -- wrong side out, but still cute. (That's what happens when you let him dress himself!) He was a little worn out when I got there -- his bloodwork was a little out of whack so they adjusted his o2 a little and he seemed to be feeling better about things. As Dr. Rao says, this is just normal behavior. Allan's going to feel better some days than others. Still, overall, his lungs look pretty good and he was awake and checking me out when I first got there.
Griffith was feeling better today, too. He was wearing some inordinately large blue crocheted booties and that was ticking him off. Still, it was giving him something to work on other than pulling out his vent tube. The docs are just waiting on him to put on a little more weight before they try him off of the vent again. Unless he pulls the tube out again. In which case, they expect him to give it the ol' college try. He was pretty wide awake when I was there, too, and we were able to hang out for quite a while before I had to come back.
So, so far so good again. Here's hoping they don't get rowdy this weekend.
Friday, May 19, 2006
Thursday, May 18, 2006
Thursday afternoon update May 18th
It has been good to hear from so many of you. I'm glad that you've been able to check in on the boys. I'm still learning how to post, etc., so bear with us on that.
Allan has now assumed the mantle of Golden Boy (we can't have two at the same time, but more on that later.) He's been an angel for 8 days now. When we got to the hospital last night, he had been very fussy for about an hour -- kicking and flailing and generally making a nuisance of himself. The nurse wasn't sure that he was going to tolerate being taken out for K-care, but let us give it try. Golden Boy snuggled right in, hung out with me for about five minutes and then fell into a deep sleep. I got to hold him for about an hour. Apparently all he needed was a little lovin'. His weight is fairly steady at 2 lbs 9 oz. He was very peaceful all morning, too. As Dr. Rao said, he is now the happy twin.
Griffith, being all boy, did not wish to take a bath last night. (He takes after his cousin Thomas. I will have to have the same talk with him as Thomas and I had when he decided to stop taking baths and/or using soap and shampoo. Essentially: Boy, kids always remember who the stinky kids were and who picked his nose and all sorts of crap like that. You don't want to be the stinky kid. You will never get a date to Prom if you don't take a bath. With soap. And water.) Anyway, Griffith was very irritable and unsettled so we didn't get to give him a bath or Kcare. He has a lot of crud in his lungs that keeps blocking his tube and causing him distress. They are doing some tests today to see if they can figure out why he's so mucus-y. If he doesn't straighted up, he is going to go from Golden Child to Snot-Nosed Brat in a hurry.
Still, the misbehavior we are seeing right now is pretty minor, comparatively speaking. Here's hoping for another 8 days like this.
Allan has now assumed the mantle of Golden Boy (we can't have two at the same time, but more on that later.) He's been an angel for 8 days now. When we got to the hospital last night, he had been very fussy for about an hour -- kicking and flailing and generally making a nuisance of himself. The nurse wasn't sure that he was going to tolerate being taken out for K-care, but let us give it try. Golden Boy snuggled right in, hung out with me for about five minutes and then fell into a deep sleep. I got to hold him for about an hour. Apparently all he needed was a little lovin'. His weight is fairly steady at 2 lbs 9 oz. He was very peaceful all morning, too. As Dr. Rao said, he is now the happy twin.
Griffith, being all boy, did not wish to take a bath last night. (He takes after his cousin Thomas. I will have to have the same talk with him as Thomas and I had when he decided to stop taking baths and/or using soap and shampoo. Essentially: Boy, kids always remember who the stinky kids were and who picked his nose and all sorts of crap like that. You don't want to be the stinky kid. You will never get a date to Prom if you don't take a bath. With soap. And water.) Anyway, Griffith was very irritable and unsettled so we didn't get to give him a bath or Kcare. He has a lot of crud in his lungs that keeps blocking his tube and causing him distress. They are doing some tests today to see if they can figure out why he's so mucus-y. If he doesn't straighted up, he is going to go from Golden Child to Snot-Nosed Brat in a hurry.
Still, the misbehavior we are seeing right now is pretty minor, comparatively speaking. Here's hoping for another 8 days like this.
Wednesday, May 17, 2006
Up and Running (Finally!)
Okay, everyone, we are up and running.
I'm just now trying to get some new pictures processed and posted.
The afternoon update ---
The boys have now managed to put together 7 whole days in a row of good behavior. Griffith is still on the vent, but is on minimal settings according to Dr. Rao and they will either let him pull out the tube himself (which he does pretty frequently) and leave it out or they will take him off again when he has gained a little more weight -- another 100-150 grams or so. We are going to get to give him his bath tonight which will no doubt p*ss him off royally. I can't wait and hope to have pictures soon. Allan, too, is acting like a little angel. He is still puffy, but not as much as he was. He is still on the vent and they are weaning him down on his O2 slowly but steadily. No bath for him yet, but it isn't as if he is out there playing in the dirt (not yet any way.)
Anyway....all good reports so far.
I'm going to try to put up some more pictures. Let me know if you have any problems with the site.
I'm just now trying to get some new pictures processed and posted.
The afternoon update ---
The boys have now managed to put together 7 whole days in a row of good behavior. Griffith is still on the vent, but is on minimal settings according to Dr. Rao and they will either let him pull out the tube himself (which he does pretty frequently) and leave it out or they will take him off again when he has gained a little more weight -- another 100-150 grams or so. We are going to get to give him his bath tonight which will no doubt p*ss him off royally. I can't wait and hope to have pictures soon. Allan, too, is acting like a little angel. He is still puffy, but not as much as he was. He is still on the vent and they are weaning him down on his O2 slowly but steadily. No bath for him yet, but it isn't as if he is out there playing in the dirt (not yet any way.)
Anyway....all good reports so far.
I'm going to try to put up some more pictures. Let me know if you have any problems with the site.
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