Tuesday July 25th

The boys are eagerly awaiting the arrival of their grandparents from across the pond. We had a big discussion about it today at lunch and they are supposed to sleep all afternoon so they can really put on a show tonight.
Allan is still stumping the doctors. They haven't been able to get a handle on his fluid retention yet. They are doing a few more tests today and adjusting some of his medications to try to get him back on track.
Griffith was off of the cannula for about 18 hours yesterday before he starting dipping on his sats. He did great, but he's a little tired today. Plus, Jenny had to put in a new IV and that made him very, very angry. They are increasing his feeds and we hope that he'll process that like a trooper. Poop Watch 2006 (part XL) has begun.
Jay's mom and dad get here late this afternoon so they should be able to go with us for a visit after shift change. I'll try to get some good pictures and post them tonight.