Tuesday, August 01, 2006

One step forward, two steps back.... 8.01.06

A mixed bag today...Allan has gone back on the C-pap. Nothing catastrophic has happened. He's fine. With the start of the month, we change attendings and this one wants to try a different approach with him. He has been having quite a lot of trouble lately with fluid retention and needing higher percentages of oxygen. Poor little fellow is just having trouble making progress. So -- back on the C-pap which gives him a little more support so that he doesn't have to work so hard to breathe. He'll get a little rest, build up some reserves and maybe give the doctors a chance to figure out his fluid situation. Or just give him a little more time to mature. He doesn't like it much, but he doesn't fight it like Griffith did. With a little luck, this will only be for a short time and then we'll pick up some forward momentum.
Griffith's day got off to a rousing start. Apparently the physical therapist came to do his behavioral assessment this morning. She woke him up, poked and prodded him and then observed that he became quite tense. And that the more you poke at and/or fool with him, the angrier and more tense he becomes. (Yes, well, the apple didn't fall far on that one. How 'bout we just don't pester him?) Oh, and he's going to have to learn how to relax more and there are some exercises we can do for that. (Mother/baby yoga?) Anyway, despite his elevated level of irritation, he remains off of the oxygen and is doing great. This makes him more easily transportable so he and Alissa have been bebopping around the NICU all day. They've even worked on the computer together. He is such a clever boy. He'll be blogging any day now.